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Boy’s family seeks donations to fight fatal disease

LOCKPORT – The relatives of a 7-year-old Town of Lockport boy suffering from an incurable disease are soliciting donations on line to fund research into the disease.

The boy, Michael Lewandowski, suffers from mucopolysaccharidosis type 2, also known as MPS II or Hunter Syndrome. It means his body lacks the enzyme that breaks down sugar molecules. He takes a weekly three-hour infusion treatment of medication administered through a port embedded in his chest, according to his aunt, Elizabeth Defazio. She said children with the disease seldom live to adulthood.

Donations can be made at ProjectAlive.org or by texting the word ALIVE to 91999. The site features a link to a two-minute YouTube video that includes Michael holding up a sign that says, “Help Us Grow Up.”